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Sunday, May 9, 2010

05-09-10 Sunday

Here I am still...
Took a road trip on Friday for my 6mo. neuro check up, bitch of a trip, had CH attack while driving back home from app. this is always a given since air pressure changes seem to cause some of my attacks. Check up was the usual, nothing new still suffering with CH. The Doc gave me samples of the new SUMAVEL DosePro needles injector telling me it was cheaper than the shots to use. Now I'm wondering after hitting the CH msg board if he fibbed to me since at least one member there tells me his insurance would not cover it since it was so expensive, so for now he is sticking to the shots. Great just what I needed to hear. < Note Sarcasm >

On another note you'd think the needless injector would look more like something from Star Trek or Star Gate but it looks more like something from the Jetsons LOL


I am still working LOTS of Over Time at work which isn't helpful when dealing with CH, not to mention that I am getting so exhausted that I'm not sure which end is up anymore.

The last 72 hours have been hell started with hit on Friday due to travel and yesterday I went for the O2 so many times I lost count. Last O2 trip was at 4am oh joy, gave up at that point and just left it on so if I needed it again all I had to do was reach for the mask that was in bed next to me. I have an O2 machine that runs at 5 lpm which helps avoid a shot or the nasal imitrex usage when I'm at home. I can't take it to work with me so at work it's shots or nasal imitrex. (Same s&*! different day there.)

I am still CH Chronic and have at least 2-3 attacks per week more if it's a bad week. Some attacks are mild some are Killer. The killer ones I have to take something to stop them if they are more mild I'll fight through them if at work if possible or use the nasal if they increase to the point were I can't function. Other wise its shot time or if at home running for the O2.

When the people I work with aren't getting freaked out by the CH they are pretty understanding and just keep their distance when I have one, needless to say you can tell just by looking at me if I am having a CH hit.

Due to the OT I've been working I haven't been updating much here and in all honesty am getting tired of writing the same ol' s&*!, but I do need to keep this going since it is a helpful log for me and in the end it may wind up helping someone else. Needless to say I have had too numerous CH hits to remember or log each one in the last month so I am generalizing my posting as far as my hits go.

I hope to post again in a month or so, since the OT at work is continuing until further notice or until we get laid off which ever comes first...Long story there and not posting about it here, sorry company policy.

Until next time Stay Pain Free!